(a monthly forum for the PPCM community)
Note: Zoom link above will not work until 30 minutes prior to meeting.
Next meeting: March 16th, 2022 – 8 PM EST
Join us for a PPCM Presentation with Sarah Stanton, APRN
Visit this page anytime by going to: tinyurl.com/PPCM-Heart-to-Heart
Meeting will be limited to 300 participants. Please RSVP at http://evite.me/u8w1Dgcnte (or tinyurl.com/Heart-to-Heart-invite-03162022). You may submit questions, comments or topics for discussion in your RSVP or by emailing ppcm.research@gmail.com.
Help us end PPCM
A message from the PPCM Research Initiative
We are addressing Peripartum Cardiomyopathy, a disease that is responsible for nearly 20% of pregnancy-related maternal mortality, particularly in underserved or minority populations, and is the cause of 1 in 20 heart transplants in women in the U.S. It is easy to diagnose and treat but it is diagnosed too late in many women because there are no screening recommendations or guidelines for referral. PPCM is more common than Downs Syndrome in the U.S. South, yet no one has ever heard of it!
We are working together to find a solution to this problem that devastates families and ends young women’s lives prematurely from a disease that we ALREADY KNOW how to treat.
National PPCM Events – Upcoming – (in progress)
This will be a listing of all PPCM events held nationwide. Anyone can add an event. Verified Events will be added to the public Calendar.
Add an event (in progress). View the Calendar (in progress).
PPCM Physicians (in progress)
This will be a place to recommend or find physicians that are knowledgeable and adept at treating women diagnosed with PPCM or suspected to have PPCM. All recommendations are based on recommendations from the PPCM Community. The PPCM Research Initiative does not participate in selecting or promoting physicians and has no financial or other interests or involvement with the physicians listed. We are merely providing the platform for discussion.
Add a physician (in progress). View the map (in progress).
List of PPCM Organizations, Resources, Support Groups, etc. (in progress)
From the PPCM community, for the PPCM Community. This will be a place to find PPCM awareness groups, support groups or other resources. All recommendations are based on recommendations from the PPCM Community. Any affiliations to the PPCM Research Initiative (PCRI) will be noted.
Add an organization (in progress). View the list (in progress).
“It is the curse of humanity that it learns to tolerate even the most horrible situations by habituation…Medical education does not exist to provide students with a way of making a living, but to ensure the health of the community…The physicians are the natural attorneys of the poor, and the social problems should largely be solved by them.”
―Tracy Kidder, Mountains Beyond Mountains: The Quest of Dr. Paul Farmer, a Man Who Would Cure the World
Peripartum Cardiomyopathy Research Initiative 